Lyme is Hard. The pain, isolation, crushing fatigue, brain fog, cost of treatment, loss of careers, loss of relationships, and so much more. Lyme non-profits are funding groundbreaking research to help develop more accurate diagnostic tests and effective treatments. Hold on, even if for just one more day, then one more.
You are not alone and there are resources to help.
If you're in crisis or need immediate help, please reach out right now—talking to someone can make a difference. In the United States, call or text 988 for the Suicide & Crisis Lifeline (24/7, free, confidential support via phone, text, or or online chat at 988lifeline.org).
Crisis Text Line (US): Text HOME to 741741 for 24/7 support. (psychiatry.wisc.edu)
International Directory: Use findahelpline.com to search verified hotlines in over 130 countries (phone, text, or chat).
Whether virtual, in person, or online, support groups are a safe space to connect with people who understand what you’re going through.
Mothers Against Lyme
A community empowering women who are parents of sick children or are sick themselves. They discuss a common theme at each meeting, share stories of struggles caused by Lyme, and provide advice.
NatCap Lyme
A network of NatCapLyme support groups in the District of Columbia, Virginia, and Maryland offers meetings, events, and education. Support groups vary in their focus with emphasis on support, education, and social gatherings.
Generation Lyme
Generation Lyme provides virtual Meet-Ups where patients and supporters of all ages and backgrounds can feel supported, connected, and inspired.
Rise Above Lyme
Rise Above Lyme is an initiative dedicated to helping those suffering from Lyme disease and its related co-infections. Through our online support groups and compilation of verified resources, they aim to provide those suffering with hope, comfort, and advocacy.
LymeDisease.org
This Lyme support group, sponsored by LymeDisease.org, offers virtual meetings and places to share information and emotional support for people dealing with Lyme and tick-borne diseases.
Florida Lyme Friends
Florida Lyme Friends is a private Facebook group for friends who have Lyme and support each other.
PARENTS of CHILDREN with PANDAS/PANS/LYME/TICK-BORNE DISEASES
A safe place for parents to come for support & information for their children afflicted with PANDAS/PANS and/or Lyme & Tick-Borne Diseases.
Parents of Kids With Lyme
A private group help families of Children with Lyme, collaborate ideas and support each other with the daily struggle of keeping daily normality of childhood while in the midst of their pain.
Babesia Buddies
This private group is for patients with Babesia or their caregivers.
Beating Bartonella
A private group for patients with Bartonella, along with their caregivers.
Lyme Disease and Co-Infections
This private group is devoted to sharing information with and supporting those whose lives have been touched by Lyme and its Co-Infections. They find Burrascano protocols and the use of antibiotics to be a solid foundation but also share their experiences with alternative therapies.
Healing Mold, Lyme, CIRS, MCS and Biotoxin Illness Support
The aim of this group is to focus first on natural medicine and alternative remedies, as well as pharmaceutical options. This group is also intended to help one another through the trials and troubles of these illnesses.
Lyme Carditis
This private group is dedicated to discussions of the cardiological manifestations of Lyme Disease and co-infections.
S.O.T. for Lyme, EBV & Co-infections
A support group discussing Supportive Oligonucleotide Therapy (S.O.T.), a proposed treatment for chronic infections like Lyme disease and Epstein-Barr virus (EBV), which aims to degrade the pathogen's RNA to stop it from replicating.
Lyme Success Stories
This group was formed to be a place where those who have suffered with and are close to healing or have defeated Lyme can share their testimonies in order to encourage others.
** Although FLDA maintains links to support groups for Lyme patients, please keep in mind that these groups and resources are independent of FLDA.
